Own Your Crohn’s

Empowering the Chronically Ill & Disabled to Lead Fuller Lives

Saravanan’s Exercise Tips as a Crohnie & Ostomate

As an ostomate and IBD patient, many people often ask me if I am able to play sports. I tell them ‘YES’. Yes, we can actively participate in sport activities, but there may be some restrictions. For example, Larry Nance Jr. is an NBA star who has Crohn’s disease...

A Gutsy Feeling: Advocating for the Best Care Possible as IBD Patients

By Tina Aswani Omprakash **Supported by agutsyfeeling.org, a collaboration between Girls With Guts, Purdue University, College of Pharmacy, and the Academy for Continued Healthcare Learning** In today’s day and age, there are many treatment options for inflammatory...

Bachatera with a Bag: Theodora Shattering Ostomy Stigma Through Dance

Elegance, beauty, confidence, and rhythm: these are some words used to describe a female Latin dancer. Chemistry, passion, sensuality: these often come to mind when describing or watching a Latin dance couple. Each genre of dance comes with its own culture. Dance...

IBD Motherhood Unplugged: Womanhood Questioned by Crohn’s Disease

Motherhood is so much more than a word—it’s an expectation and an identity. It’s a right of passage many girls dream of when they think about their future and what their family will look like. But family planning, pregnancy, and motherhood are far from a given,...

~OYC Trailblazers~ Mara Living Her Best Life with a Kock Pouch in Germany

My name is Mara and I am from a small state in Germany called Bremen. I was diagnosed with inflammatory bowel disease in 2016 when I was 21. Shortly after my diagnosis, I celebrated my 22nd birthday. I am pursuing my Ph.D. in Marine Microbiology working to learn more...

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Highlights from ACG 2024: SAIA’s IBDesis’ Patient Experience

Dec 4, 2024

By: Madhura Balasubramaniam, Sharan Khela & Tina Aswani-Omprakash Our patient advocate team, SAIA’s IBDesis, were honoured to participate in the American College of Gastroenterology’s (ACG) Annual Scientific Meeting in Philadelphia, PA, USA, between October 25th...

SAIA is proud to announce Tina Aswani-Omprakash, MPH as our full-time CEO!

Nov 18, 2024

SAIA is honoured to announce that Tina Aswani-Omprakash, MPH, is now our full-time Chief Executive Officer 🎉🎉 Written by Madhura Balasubramaniam, Sharan Khela, Dr. Neilanjan Nandi & SAIA’s Board of Directors Tina is a patient advocate and thought leader par...

HealtheVoices 10-Year Anniversary (A Reminder of Why We Advocate)

Oct 19, 2024

Originally published by The Insighters® on October 18th, 2024: https://theinsighters.com/blog-posts/13 As I reflect on my HealtheVoices experience this year on the conference’s 10-year anniversary, I see a bastion of hope, of love, and of support for years to come....

How Ostomy Surgery Impacted My Life

Oct 5, 2024

How ostomy surgery gave Tina Aswani-Omprakash her life back and the impact these surgeries can have in IBD treatment. Originally published on IBD Social Circle's Blog It is estimated that approximately three-quarters of Crohn’s disease patients and a third of...

Managing Crohn’s Disease and Going Back to School

Sep 4, 2024

In the summer of 2023, I graduated from Mount Sinai’s Icahn School of Medicine with a Master of Public Health (MPH) degree. In 2018 and 2019, as I was considering supplementing my patient advocacy work with a formal education in health, it was daunting to think how I...

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