• acceptance,  advocacy,  awareness,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  patient rights,  Ulcerative Colitis

    Allowing Acceptance In

    Thanksgiving season is upon us, dearests! As we prepare to celebrate life, love and laughter with our families and friends, it may be tough to avoid the elephant in the room: our chronic illnesses and disabilities. As hard as this may be, we can get through the holidays together by advocating for better quality of life and allowing acceptance of our conditions in! Our bodies may not be in perfect condition but let’s be thankful today and always for the moments of health, peace and joy that shine their way into our lives. ‘Tis the season to allow acceptance to pervade our lives to cultivate more love and better self-care!…

  • acceptance,  advocacy,  awareness,  coping with flares,  Crohn's,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    My Feature During Crohn’s & Colitis Awareness Week

    Pleased to announce that this year I have the honor of representing my fellow IBD warriors for Awareness Week (12/1-12/7) nationally on the Crohn’s and Colitis Foundation’s website! REPRESENT!! Inflammatory bowel disease (IBD) comes in all shapes, sizes, colors, ages, genders and sexual orientations. IBD affects 1.6 million people and counting in the U.S. alone and over 5 million worldwide. This chronic, autoimmune and often invisible condition is growing by leaps and bounds unfortunately every single year. It wreaks havoc on our guts, bodies and mental health. It behooves us to recognize and de-stigmatize IBD and chronic illness in general so that folks like us can live fuller, happier lives. I…

  • acceptance,  advocacy,  Appendicitis,  awareness,  Ostomy,  patient rights,  stigma

    Edgar Flores opens up about surviving near-death and the challenges of living with an ostomy in Mexico

    Ayatka Wuikot Tlatuan is the Native American name given to Edgar Flores, a 48-year-old Mexico City native who was born into two tribes. His mother Aztec and father Apache Indian. Just over two years ago, Edgar developed appendicitis and underwent an emergency operation to remove his appendix. What happened next truly shocked him. “I thought the operation had gone smoothly, but within a few days I began to experience severe stomach pain and felt very weak,” he said. As the situation went from bad to worse, Edgar was rushed to the hospital where an ER surgeon discovered that his abdomen was filling with blood. He was hemorrhaging from the inside. Read…

  • advocacy,  awareness,  Crohn's,  Disease Prevention,  Influenza,  living with IBD,  Ulcerative Colitis,  Vaccinations

    Don’t Forget Your Flu Shot This Fall

    As I got up from dinner to use the bathroom, the room began to spin. Thinking I was just a bit dizzy, I continued on my way to the bathroom. I didn’t know it then, but the next five months of my life would be like a carousel as I stumbled my way through labyrinthitis — an inner ear infection — and a symptom that can occur along with the influenza virus. This happened nearly two years ago, but the images are still vivid in my mind. I had been dizzy for over 72 hours when I decided to go to the hospital. It was December, and the streets were festooned with Christmas…

  • acceptance,  advocacy,  awareness,  colorectal cancer,  Colorectal Surgery,  Crohn's,  living with IBD,  Ostomy,  patient rights,  stigma,  Ulcerative Colitis

    Real Talk about Ostomies

    On the eve of World Ostomy Day, I write this blog post in hopes of debunking many of the myths surrounding living with an ostomy. So here goes nothing… I always get super excited when friends and family muster up the courage to ask about my ostomy. It makes me feel so connected to them and like I’m being recognized for all of me and not just the healthy-looking parts of me. I feel their concern, their love and most of all, their interest in how I live my life, chronic illness and disabilities abound. See, the thing is, living with an ostomy is often the proverbial elephant in the…

  • advocacy,  awareness,  Colorectal Surgery,  coping with flares,  Crohn's,  living with IBD,  patient rights,  Ulcerative Colitis

    Sepsis Is a Severe, Life-threatening Complication for IBD Patients

    It’s Sepsis Awareness Month, so I’m discussing what sepsis is and how it is often a complication of inflammatory bowel disease (IBD) and colorectal surgery. According to the World Health Organization (WHO), “sepsis arises when the body’s response to an infection injures its own tissues and organs, potentially leading to death or significant morbidity.” WHO statistics show that more than 30 million people contract sepsis each year, and 6 million die from it. But aside from all these scientific terms and statistics, what is sepsis? To me, sepsis looked and felt like the following: It all started with a 103-degree fever, a high pulse well into the 130s, low blood pressure hovering around…

  • acceptance,  advocacy,  awareness,  Colorectal Surgery,  coping with flare,  Crohn's,  living with IBD,  Ostomy,  patient rights,  stigma,  Ulcerative Colitis

    The Value of Support Groups

    In a world where medical professionals have only a few minutes to go over a whole slew of symptoms, medication interactions, and surgical complications, it is impossible to cover the psychosocial aspects of one’s condition(s). These aspects include methods of coping with the emotional roller coaster of living with inflammatory bowel disease (IBD).This is where support groups come into the picture. They fill that gap between doctor-patient interactions and provide real-time support and understanding to patients caught in the rigmarole of hospital visits, health insurance, and invasive testing. But more than this, the true value of support groups lies in empowering patients by fostering lifelong friendships through a deep understanding of…

  • acceptance,  advocacy,  awareness,  Crohn's,  living with IBD,  Ostomy,  patient rights,  stigma,  Ulcerative Colitis

    Being Brown and Coming Out of the IBD Closet: The Chronic Illness Experience

    Being Brown and Coming Out of the IBD Closet: The Chronic Illness Experience [All photos courtesy of Tina Aswani Omprakash]   Just as soon as he landed from India, a good friend called me, half laughing: “Tina, I know exactly what it feels like to be you now! I’ve had diarrhea for the last three weeks after eating at Elco Market in Mumbai! What do I do?” Another time when I was deathly ill, languishing from anemia, malnutrition and weight loss due to 20-30 bloody bowel movements a day, I remember the aunties ridiculing me. They would cackle behind my back as they proclaimed that I did this to myself.…

  • colorectal cancer,  coping with flares,  Crohn's,  hydration,  living with IBD,  Ostomy

    The Hydration Challenge

    We all know the feeling of waking up to our legs cramping, and our voices barely squeezing out a faint peep as an intense lightheadedness sets in. These symptoms, among others, are classic indications of dehydration. And with summer now in full swing, it is high time we talk about the importance of hydration. So, why does dehydration happen and why is it so important to stay hydrated as an IBD patient? According to the Mayo Clinic, “dehydration occurs when you use or lose more fluid than you take in, and your body doesn’t have enough water and other fluids to carry out its normal functions.” Dehydration comes into play…

  • awareness,  coping with flares,  Crohn's,  Independence Day,  living with IBD,  Ostomy,  stigma,  Ulcerative Colitis

    My Very Own Independence Day

               Today, Independence Day 2018, marks 10 years since my colon and rectum were removed in emergency. I was 24 years old, 85 lbs, being fed by a PICC line and the hair on my head was greying from malnutrition. I was dying from IBD my doctors warned me as they urged me to have surgery. I remember that day so clearly when my then boyfriend/now husband, Anand, along with my close friend, Radhika, drove me into the city to have emergency surgery. And when my surgeon came up to me in the emergency room, he expressed that I may be too far-gone, that he was…